The three pillars of PQCNC are the spread of clinically effective, family centered and fiscally responsible care practices across the state of North Carolina. The collaborative is comprised of folks throughout the state of North Carolina who have a vested interest in PQCNC's mission including care providers, payors, family representatives, and other maternal and infant health leaders. PQCNC is deeply committed to partnering with family members and is looking to family members and family advocates to provide input as to the quality initiatives that would be most beneficial to families and, most importantly, to work as team members on those initiatives. In support of that aspect of our mission we are proud to convene and support the efforts of a Family Focus Group. While not an initiative per se, it is still a very important part of PQCNC activities as the Family Focus Group will provide additional ways for us to learn from each other and discuss ways to involve patients and families in order to improve health care delivery. Ideas exchanged through the Family Focus Group will enhance the collaboration between families, care providers and other stakeholders involved in perinatal care at the state and local level. For more information, to get involved, or to subscribe to updates of Family Focus Group activities contact Keith M. Cochran.
This seminar provides three anda half days of comprehensive and practical sessions designed to help administrative leaders, board members, physicians, nurses and other clinical staff, patients, and families become effective agents for patient- and family-centered change in their institutions. Participants will gain the knowledge and skills to begin to transform health care within hospitals, ambulatory care settings, and community practices to address the challenges and recommendations discussed in the Institute of Medicine’s report, Crossing the Quality Chasm: A New Health System for the 21st Century and more recently, the National Priorities Partnership’s report, National Goals and Priorities: Aligning Our Efforts to Transform America’s Healthcare.
Advancing Effective Communication, Cultural Competence, and Patient- and Family-Centered Care: A Roadmap for Hospitals is a monograph developed by The Joint Commission to inspire hospitals to integrate concepts from the communication, cultural competence, and patient- and family-centered care fields into their organizations. The Roadmap for Hospitals provides recommendations to help hospitals address unique patient needs, meet the new Patient-Centered Communication standards, and comply with existing Joint Commission requirements. Example practices, information on laws and regulations, and links to supplemental information, model policies, and educational tools are also included. The Patient-Centered Communication standards will be presented in a separate appendix that provides self-assessment guidelines and example practices for each standard.
Patient Centered Communication Standards (JCAHO)
The Stockholm Neonatal Family Centered Care Study: effects on length of stay and infant morbidity - jumping to the conclusion:
"Providing facilities for parents to stay in the neonatal unit from admission to discharge may reduce the total length of stay for infants born prematurely. The reduced risk of moderate-to-severe bronchopulmonary dysplasia needs additional investigation."
My grandson was born at 23 weeks and I keep a journal online of things that have gone on with him, good and bad and I feel because I am also a NICU nurse (in that unit) that I might present a unique view point.
"24 0/7 weeks, Zane decided that he no longer wanted to wait to see the
world, and he proceeded to kick his way out, 30 mintues later via an
emergent c-section Zane was born. He did cry but his heart rate was less
than 70, he was intubated and given surfactant and brought back to the
NICU- neonatal intensive care unit..."
Thanks to the efforts of Michelle Clements at WakeMed we are pleased to announce an upcoming meeting for NICU Family Educators to discuss family discharge readiness programs and resources - an excellent opportunity for ongoing collaboration as we all strive to deliver excellence in Family Centered Care. (Each family educator is encouraged to bring copies of discharge teaching forms and lists of teaching resources to discuss and share.)
Registration is now open for the Family/Discharge Educator meeting at the Andrews Center in Raleigh on Wednesday, November 11, 2009 from 10:00 AM to 2:00 PM.
The second PQNC Family Focus Group Meeting took place last week. Highlights from the agenda include: 1) Storyboard presentations of projects folks are particularly proud of 2)presentation of QI Tools you can use at your facility 3) Partnering with Families for QI: Your Hospital - sharing what's going on at your hospital-What have you found to be the top 5 ways to involve families? What have been your top 5 barriers and how have they been overcome and/or what do you need to overcome them? 4) The State of PQCNC - A brief update on projects, as well as discussion surrounding the work being done to collaborate with families. 5) a Nursery Tour
Registration is now open for the Family Focus Group III meeting in Charlotte on Wednesday, April 29th, 2009 from 10:00 AM to 3:00 PM in the Levine Children's Hospital (LCH) Auditorium. Click here to register.
The second PQNC Family Focus Group Meeting took place last week. Included on the agenda: 1) Show & Share - folks sharing (in three minutes or less) their favorite aspect of their family centered activities and why as an opportunity for all of us to learn more about other centers and generate ideas we can use when we get back home. 2) Small group discussions around barriers and potential state-wide problems in pursuing the goal of family centered care. 3) First look / sneak peek at HYB.com - web-based real time tool to measure patient satisfaction and readiness for discharge. 4) How you can participate in PQCNC (with brief project updates) 5) Nursery Tour 6) Afternoon free-form group discussion - unstructured time to talk about what's on your mind.
Registration is now open for the Family Focus Group II meeting in Raleigh on September 24, 2008 from 10:00 AM to 3:00 PM at the Andrews Center. Click here to register.
The first PQNC Family Focus Group Meeting took place last week. It was a gathering of NICU and perinatal family support specialists, as well as family members with perinatal experiences which have led them to seek opportunities to actively improve perinatal care in the state. The meeting was held in Greensboro at the Koury Center and about 30 attendees were present. It began at 10:00 AM and ended at 4:00 PM, though it easily could have gone on hours longer. It was eye opening to hear the wisdom, ideas, and comments of all these folks as they discussed the participation of families and family support specialists in PQCNC. A range of issues from family participation in daily NICU function, to participation in NICU leadership boards (not just family advisory boards) through active education of families to develop methods for them to participate directly in quality projects was discussed.
There was agreement from all present that they wanted to participate at all levels of the PQCNC organization and many reported they would return to their units and discuss the days' events with providers in their units. We are planning a follow up meeting with a more focused agenda, based on deliverables from this initial meeting. It is simply stunning how little we as providers, even those who have been on the maternal cot or radiant warmer, know about what families are thinking. Look forward to our next gathering!
My grandson was born at 23 weeks and I keep a journal online of things that have gone on with him, good and bad and I feel because I am also a NICU nurse (in that unit) that I might present a unique view point.