Updates

November 5, 2013

It’s been a busy month for the Patient and Family Engagement Initiative -  teams have been sharing their efforts to partner with patients and families and weekly newsletters have highlighted their work, offering a mechanism for sharing tools that have helped support their progress. The October webinar focused on engaging Volunteer Services with a very detailed presentation as well as an opportunity to learn from teams already experienced in this area.

September 15, 2013

We are thrilled to say that the Patient and Family Engagement Initiative Kicked of last week at the McKimmon Center in Raleigh with a very successful first Learning Session! There was no lack of passion in the room as hospitals from across the state with representatives from both mom/baby and NICU teams came together to learn, share, and create plans to ensure that patients and their families would be partners in their improvement efforts. A special thanks to Sue Collier from the North Carolina Quality Center and Julie Barnes from Wake Forest Baptist Medical Center for sharing their knowledge, expertise, and resources with all of us in attendance! This week, teams will meet via webinar to talk about their plans and begin data collection. We look forward to sharing more of their incredible work in the coming weeks…

August 15, 2013

The Expert Team has completed an incredible amount of work over the past month to prepare for the Patient and Family Initiative Kickoff in September! The last four weeks have been spent defining the scope of the initiative, prioritizing outcomes, and identifying data that will be meaningful to the teams and is representative of the work we hope to accomplish. Teams across the state have already expressed their interest through the Letter of Intent process. Starting this week, they will be able to register for the initiative and prepare team members for the first Learning Session on September 4th. 

July 13, 2013

The Patient and Family Engagement Expert Team is forming with strong representation from across the state. Over the next month they'll be working to develop the scope of the workshop, the measurable goals and outcomes, reports that will help us in this effort and what data will need to be collected. With those pieces in place they'll develop an Action Plan to share with participating teams at the kickoff meeting for this initiative in September 2013. 

February 3, 2011

Family-centered care (FCC) has been increasingly emphasized as an important and necessary element of neonatal intensive care. FCC is conceptualized as a philosophy with a set of guiding principles, as well as a cohort of programs, services, and practices that many hospitals have embraced. Several factors drive the pressing need for family-centered care and support of families of infants in NICUs, including the increase in the number of infants in NICUs; growth in diversity of the population and their concurrent needs; identification of parental and familial stress and lack of parenting confidence; and gaps in support for families, as identified by parents and NICU staff. We explore the origins of and advances in FCC in the NICU and identify various delivery methods and aspects of FCC and family support in the NICU. We examine the research and available evidence supporting FCC in the NICU and offer recommendations for increased dissemination and for future study.

Seminars in Perinatology 2011 Feb;35(1):20-8.

January 24, 2011

Understanding and improving how patients experience their care is a key component to successfully delivering high-quality services that are based on their needs. This report looks at what we know about improving patients’ experiences of hospital care and shares the approaches of both UK and USA hospital providers that have made significant progress in providing services that are truly patient centered.

Feeling Better? Improving Patient Experience in Hospital

August 25, 2010

This seminar provides three anda half days of comprehensive and practical sessions designed to help administrative leaders, board members, physicians, nurses and other clinical staff, patients, and families become effective agents for patient- and family-centered change in their institutions. Participants will gain the knowledge and skills to begin to transform health care within hospitals, ambulatory care settings, and community practices to address the challenges and recommendations discussed in the Institute of Medicine’s report, Crossing the Quality Chasm: A New Health System for the 21st Century and more recently, the National Priorities Partnership’s report, National Goals and Priorities: Aligning Our Efforts to Transform America’s Healthcare.

November 1-4, 2010 Pinehurst, NC

Click here for more information

August 9, 2010

Advancing Effective Communication, Cultural Competence, and Patient- and Family-Centered Care: A Roadmap for Hospitals  is a monograph developed by The Joint Commission to inspire hospitals to integrate concepts from the communication, cultural competence, and patient- and family-centered care fields into their organizations. The Roadmap for Hospitals provides recommendations to help hospitals address unique patient needs, meet the new Patient-Centered Communication standards, and comply with existing Joint Commission requirements. Example practices, information on laws and regulations, and links to supplemental information, model policies, and educational tools are also included. The Patient-Centered Communication standards will be presented in a separate appendix that provides self-assessment guidelines and example practices for each standard. Patient Centered Communication Standards (JCAHO)

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