Baby Steps Home from NANN; it’s an evidence-based guide for healthcare professionals with accompanying parent information that covers different phases of the NICU experience (not just going home). The sections cover many subjects, including a section on different common diagnoses. All files come in PDF format as well as modifiable Word formats.
Documents
Family Conversation Scenario Design Tool
Developed by the fine folks at OHSU - primarily to handle disclosure conversation role plays between medical staff and families. In implementing it they realized that it could also be used to practice bedside change-of-shift handoffs, so they also added some outlines for those in the back.
In practice, the facilitator gets a back-to-back copy of pg. 1-2.
- If doing a disclosure sim, the participant gets pg. 3.
- If doing a bedside report sim, the participant gets a back-to-back copy of pg. 4-5.
CCHD Screening Rules - enter 'CCHD' in the search field and select 'Return Rules'
CCHD - FDA approved pulse oximetry machines recommended for CCHD screening
CCHD QuickStart Guide - a guide to creating your account and entering data
Delayed Diagnosis of Critical Congenital Heart Defects: Trends and Associated Factors
A peer-reviewed journal article in Pediatrics by Liberman et al showing that, despite increasing prenatal diagnosis rates, delayed diagnosis of CCHDs continues to occur, with rates highest among isolated cases and those delivered at non-tertiary care hospitals. The authors suggest that better understanding of delayed diagnosis could help to improve screening efforts.
A peer-reviewed journal article in Pediatric Cardiology by Mouledoux et al seeking to determine the incidence of undetected CCHD in TN and the diagnostic gap of CCHD in Middle Tennessee prior to screening implementation. The authors found that prior to implementation of screening through pulse oximetry, 12 Tennessee neonates with CCHDS were missed by prenatal ultrasound and newborn examination in 2011.
Factors Associated with Late Detection of Critical Congenital Heart Disease in Newborns
A peer-reviewed journal article in Pediatrics by Dawson et al showing that birth hospital nursery level and CCHD type were found to be associated with late CCHD detection. Authors suggest that routine newborn screening could conceivably reduce differences in the frequency of late diagnosis between birth hospital facilities.
A peer-reviewed journal article in Pediatric Cardiology by Harden et al reporting a case of CCHD with excessive pulmonary blood flow that went undetected during routine newborn screening, illustrating the need for healthcare providers to be aware of the limitations of CCHD screening.
Implementing Recommended Screening for Critical Congenital Heart Disease
A peer-reviewed journal article in Pediatrics by Martin et al proposing recommendations to address selection of screening equipment, standards for reporting of screening outcomes to stakeholders, training of health care providers and educating families, future research priorities, payment for screening, follow-up diagnostic testing, and public health oversight, and advocacy to facilitative effective and comprehensive screening.
The Nurse Champion Model for Advancing Newborn Screening of Critical Congenital Heart Disease
A peer-reviewed journal article in the Journal of Obstetric, Gynecologic, and Neonatal Nursing by Farmer et al demonstrating the value of nurse champions in creating an effective educational program to screen newborns for CCHD using pulse oximetry.
A peer-reviewed journal article in Advances in Neonatal Care by Ryan et al showing the benefits of an online nursing education program addressing the significance and rational of an evidence-based CCHD screening protocol. The authors recommend quality improvement monitoring to ensure nursing adherence moving forward.
Critical Congenital Heart Disease Screening by Pulse Oximetry in a Neonatal Intensive Care Unit
A peer-reviewed journal article in the Journal of Perinatology by Manja et al showing that performing universal screening in the NICU is feasible but is associated with a higher false-positive irate compared with asymptomatic newborn infants.
Quality Improvement in Screening for Critical Congenital Heart Disease
A peer-reviewed journal article in the Journal of Pediatrics by Oster et al showing the use of a manual algorithm for the interpretation of results in screening for critical congenital heart disease with pulse oximetry is susceptible to human error, and therefore, implementation of a computer-based tool to aide in the interpretation of the results may lead to improved accuracy and quality.